TSC Talks;  "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz

TSC Talks; "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz

Desde: TSC Talks!
0 0 hace 7 meses
Debora Moritz is a Grassroots Advocate, Chair of TS Alliance of Arizona, Member of the Government Relations Committee, and most importantly "just Griffin's mom trying to make things better for him and few other folks along the way." From diagnosis of TSC at 5 months, vigabatrin failure, ACTH treatment success, early frustrations with lack of knowledge, Debora kept asking questions everywhere she went with Griffin. Leaving no stone unturned in terms of trying anything and ... Más informaciones

Episodios

  1. 02:02
    The Back Story; Diagnosis, Infantile Spasms, Finding Support, SEGA & Drug Trial & FDA Approval
  2. 28:01
    Government Advocacy; Debora gives us an outline of the history of the March with details on Government Advocacy

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